Down Syndrome Awareness

Greetings from the road. Cincinnati tonight, heading to CA in the morning.

Had another opportunity to share my experiences with a colleague who was unaware of Down Syndrome, what it was, and what it means as a parent. This particular colleague just found out his wife is expecting child number 2 at age 38. I didn't want to scare him but the odds of him having a Down Syndrome child have increased because of his wife's age. I'm always hesitant to bring that up.

I had to explain what it meant for my son, his behaviors, what he looks like, cognitive delays, etc. This guy just didn't have a clue. There was absolutely no inkling of a possibility of his future child having any kind of challenge. It was my greatest fear when my wife was pregnant with Reece.

I once had a boss who was inspired by my strength in handling Down Syndrome, Reece's Rainbow, etc. and was always encouraging me to share my store with colleagues, clients, etc. I'm learning that it's not always an appropriate story to tell. Especially in today's social climate with the current healthcare debate...I'm not sure how I would react to someone indicating that they think my child is a drain on the healthcare system. I'm afraid that I might compromise my Christian values in my response.

I wonder if any one of you has any experience with people confronting you about your child and their special needs. I can infer from the comments of people who I know are pro choice when they say, "I know I couldn't go through with it". When they say they are afraid of having another child at thier age because of their experience with my son.

It stings. And I want to protect my son.

Anyway, what are your thoughts?

By the way - had a good 8 hour business meeting today with a strategic account. I'm encouraged by the opportunity.